This is my 8 year old son Stalen. He is autistic and non-speaking. He also loves books, the color blue, jokes and he has the best smile. He is an amazing boy.
In March 2022, he got his life changing gastrostomy feeding tube. Since then he has been able to gain over 30lbs, stay hydrated, avoid hospital admittances, and take all of his anti-seizure medications through his feeding tube. He receives 4 full feeds a day which accounts for the majority of his daily nutrition.
Since July when the #PSHCP a Government of Canada sponsored health care plan, changed from administrator Sun Life to Canada Life they no longer have been covering Stalen’s feeding tube or feeding tube supplies-without any notice or reason. It’s actually impossible to even get a representative on the phone.
Thousands of Canadians like my son Stalen are experiencing interruptions in their previously covered health equipment and medications since July and the transition to Canada Life. Many of these medications and equipment are necessary for life.
Yes, you read that right…..
life saving medications and equipment are being DENIED to Canadians.
It is a ridiculous situation when a mother has to tirelessly advocate so her child’s basic needs can be met, needs that are being interrupted by the Government of Canada (and their plan administrator). I’m not sure who in Ottawa needs to sign their name or flick a switch and correct this nightmare but it needs to happen two months ago.
Stalen's Way 