2020 was a hard year on all accounts. It showed me the grit that we are really made of. I know that we can face whatever comes our way. #TeamStalen
My greatest joy came from supporting and encouraging Stalen forward.
I hope for so much joy, love, and laughter in 2021.
I hope that the transition to school and the school experience for my boy will be so kind, so amazing and so inclusive.
I hope for true friends for him.
I hope for more words and more progress.
I hope for a healthy, happy boy who eats 3 meals a day.
I hope that he continues to show me the joy in every day.
I hope that Stalen knows how loved and incredible he is.
I hope for more adventures, making new memories and those moments that when you really stop and look around as you are enjoying them…it takes your breath away.
I hope for smooth sailing with this cecostomy. I hope for no pain and an improved quality of life.
I hope that my advocacy voice continues to grow louder.
I hope to practice meaningful self-care.
I hope to write more to share our journey.
I hope that we are able to reach more people, and spread more awareness in 2021.
I hope that we both give and receive more kindness.
I hope 2021 is one of our best years yet.
And I hope that it brings all of you love, laughter, good health, continued friendship with us, and all your hearts desires.
Last year my son Stalen went to preschool. I was so nervous and scared. It’s one thing to send your child off without you but it’s another when they are non-verbal, on the autism spectrum and have lots of unique challenges. Stalen has pica so I was worried that he would eat something he shouldn’t. He also is a runner and elopes so that weighed heavily on my mind. I was worried about him being accepted, I was worried that he wouldn’t make any friends. I was worried that he would stand out and be labelled because of his constant stimming and need to move. Would anyone in his class know about autism? Would the kids be nice to him? What if he was bullied?
The first day I was a mess. I cried so hard after I dropped him off. It’s so hard for a Mama’s heart to set their baby off into the world.
But, let me tell you. This sweet little preschool taught me so much. It was more inclusive than I could have ever imagined. It was a rare gem!
My son was invited on every field trip. We got the book orders, the memos about special events and days. There was never any discussion about limits for him in the classroom or on outings.
The kids liked him. They thought he was pretty cool because he had his own iPad. They greeted him and waved at him and spoke to him. Yet, they knew he couldn’t verbally respond. When he looked in their direction they smiled at him. He laughed when they laughed and he played next to them. He watched them and sometimes when they danced, he danced too.
When Stalen was in the hospital, they made him a special feel better book filled with happy faces, special drawings and love.
When they had their Christmas concert, he was front and center . It was so hard not to cry when I saw him up there just like everyone else.
He belonged.
When we went on the field trips it was never just him and I. Other kids always walked with us, they talked to me and asked questions. They sat with him for snack time and they sat at the table with us.
I cried in the car on the way home after one of the field trips because a little boy had asked me what my son’s favorite color was. No one had ever taken such an interest in Stalen.
All of my unspoken hopes and dreams for Stalen in a fully accepting classroom came true. It was magical!
Stalen received 3 birthday party invitations while at preschool. I cried happy tears over every single one of them. Those invitations were gold. I’m sure we will keep them forever. They are a reminder that my son deserves to be included. They are a reminder that inclusion is possible. It is a reminder that parents have so many opportunities to model inclusion. They have the opportunity to influence so many important meaningful moments that matter for other kids and their families. Moments that they will treasure. Moments that will shine bright in their lives forever. We all have the power to be someone’s sunshine.
This preschool experience taught me that it’s important to be inclusive from the very beginning. Inclusion starts at home. It is those conversations about kindness and celebrating differences that lay the foundation for inclusion. It is in birthday party invites, play dates, field trips, outings and Christmas concerts.
Children teach us the best lessons. It is possible for an autistic boy who is always on the move, who flaps and jumps and uses an iPad to communicate to be a part of a community. It is possible to be his friend. It is possible for others not to judge him but to love him. It is possible for him to be viewed as more than a diagnosis or as different. It is possible that anything is possible.
Most importantly, this experience has set the bar so high, as it should be. We know all too well what it feels like to be excluded but after knowing what it’s like to be included, I will never, ever settle for anything less for my son.
Inclusive classrooms support the abilities but also recognize the possibilities of all students.
Every year around this time I think about the perfect gift for Stalen. Our sweet amazing boy is easy to please and never asks for anything. He isn’t into the latest characters, sports, video games or trucks. He has unique interests to say the least. He isn’t like most little boys. He doesn’t care much for toys.
I have to admit that when it comes to purchasing a gift for Stalen I often struggle. When I stop and think of what brings him joy, I realize the perfect gift for Stalen doesn’t come from a store.
He loves being greeted even though he may not wave back. He loves hugs, squeezes and tickles. He loves being engaged in conversation even though he can’t verbally reply. He loves when you smile at him. It may seem like he’s looking past you but he does see you. He loves jokes. He loves when he’s laughing if you join in and start laughing too. He loves compliments. He loves holding hands. He loves being included even though he may participate from a distance. He loves being around people and people watching. He loves when you give him your time. He loves to be loved.
The perfect gift for Stalen is love, acceptance of who he really is and inclusion.
He loves to smile. He is funny and kind. He loves to laugh and dance. He loves orange Julius. He loves YouTube and the charmin bears toilet paper commercials. He loves cuddles, hugs and kisses. He lives for snack time and the weekend. He loves bubble baths and jumping on the couch. He loves a good joke and to play tricks. He loves to stay up late. He loves catalogues and stickers. He loves to be tickled. He loves to rock and move. He loves friends. He loves to be included. He loves to be accepted as he is, for who he is.