People always say to me that they think things (Autism) will get easier as Stalen gets older. I really hope that they are right! But, I don’t think that’s entirely true. One thing that I have learned since his diagnosis on January 16, 2017 is to never ever underestimate Autism. Sometimes we win a battle but the fight always continues.
I don’t think Autism will get easier, that’s not negative but me being real and truthful. I think as Stalen ages we will face new challenges like school and puberty and who really knows what else? It always seems when we get one area under control another gets out of control. It is hard to find a balance living with Autism. There may be a good day, a great outing, a fantastic haircut, an awesome supper…but it is always there whether silent or in full force.

While things may not get easier, I believe that we will be smarter. I know more now about my son and his condition than I did two years ago. It’s the little things that have become the big things.
I know when he gets a cold and doesn’t eat for 16 days not to panic. He will eat again when HE wants too. Everything is his way, his terms and that’s just the way it is whether I like it or not.
I know that the professionals do not always have the answers and they may never have them. They only see a small snapshot of my son when he is before them and EVERY kid on the spectrum is different. What works for one may not work for another.
I know my son best regardless of what anyone else may say or think.
I know that good intentions may come in the form of unsolicited advice and opinions are just that.
I know that people will come and go from our lives and that will be their choice. We are a package deal.
I know that I must always do what’s best for my son and our family.
I know that when I find something Stalen really likes to buy lots of it like shoes, certain foods, and flash cards. When my boy loves something, he loves it beyond measure.
I know that having two bottles of ketchup in the house is a minimum.
I know that being his person is exhausting and draining but he is also amazing and has chosen me.
I know that there is more than one way to do something. It’s about finding what works for us.
I know that I can give a haircut in the comfort of my kitchen with a $10 razor from Walmart and it looks good.
I know that my son is more like your child than he is different.
I know that there is no greater bond or purest form of unconditional love than that of a special needs parent (or caregiver) and their child.
I know that surrounding yourself with the right people…your “me too” people and building your community, will maintain your sanity and help you through those really dark days.
I know that there are no bad experiences only learning opportunities.
I know that I can prepare him for anything-bloodwork, hospital stays, EEG, MRI, casts, plane rides, moving to a new house. Milestones will come and we will be ready in our own way.
I know that hope is brighter than darkness and positivity will sustain us as we climb the tallest mountains.
I know that crying is part of this journey and some days will be really hard. I know that this emotional rollercoaster will never get the best of me because I won’t allow it. I may be crying in the bathroom eating cookies but this is a minor setback and tomorrow I’m bringing my strongest game.
I know that he is capable of so much and together we are unstoppable.
I know that education and advocacy are the best things I can do for my son and others living with Autism.
I know that no matter the negativity or discrimination that we will encounter we will always be okay and get through it.
Autism is a lifelong condition and I know that each year I will become smarter and stronger and we will continue to share love, laughter and live our best life and that’s all that anyone can hope for.
